Education, Carers & Community, Mental Health Torie Robinson Education, Carers & Community, Mental Health Torie Robinson

A practical and uplifting chat with writer Cheryl Tveit and Dr. Charbel El Kosseifi - about their new book on the epilepsies, created to support patients, families, teachers, and clinicians. We talk diagnosis, seizure first aid, comorbidities, quality of life, and how clear, accessible information can transform care across the lifespan!

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Seizure diaries often miss over half of seizures in LGS & Dravet! Dr Ewan Nurse shares research, new tech & why engineers, clinicians & carers must work together for improved epilepsy care.

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How reliable are seizure diaries? In this episode of Epilepsy Sparks Insights, Torie talks with Dr. Ewan Nurse about “The Silent Witness” study, which reveals why many seizures go unrecognised or misreported - and what this means for epilepsy care.

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In part two, Dr Phillip Pearl shares what drives his work in rare epilepsies, the power of advocacy, and how discoveries lead to therapies like gene therapy. We also touch on SUDEP, mental health, and the fascinating world of music & the brain!

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What if epilepsy was caused by metabolism?! Dr Phillip Pearl, Chief of Epilepsy at Boston Children’s Hospital, explains inherited metabolic epilepsies, how they affect the whole body, and why treatments from vitamin B6 to gene therapy are changing lives!

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Asst. Prof. Simona Balestrini, an adult and paediatric neurologist, shares how transcranial magnetic brain stimulation can shed light on genetic epilepsies, its safe use today & its potential exciting future possibilities!

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An epilepsy specialist neurologist develops an epilepsy! In this fascinating episode, we delve into the extraordinary journey of Dr. Jim Morrow, a retired consultant neurologist who ends up developing the disease himself!

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Dr Yanin Rivera shares how cultural beliefs, limited access to healthcare, and innovative telemedicine solutions are shaping the landscape of epilepsy treatment, care, and prevention in Mexico!

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Epileptologists Drs Brad Kamitaki & Lucas Orellana join Torie for a candid, giggly chat on sexual health in epilepsy. They explore clinician and patient fears, cultural influences, and ways to build confidence and create safe spaces for open, honest conversations. You'll also hear about the upcoming IEC Lisbon 2025 Conference!

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Milena Gandy (Clinical Psychologist) and Heidi Munger Clary (Epileptologist) talk about the intersection of epilepsy and suicide and talking about and addressing suicidal thoughts. They also highlight the upcoming IBE workshop in Lisbon, aimed at enhancing patient-centred communication in epilepsy care!

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Neurologist Dr Parthvi Ravat shares the relationship between epilepsy and Non-Epileptic Events (NEEs), symptoms of the latter, treatment options, and the importance of research and awareness in improving patient outcomes!

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Epileptologist Lucas Orellana shares the intriguing connection between migraine and epilepsy, their common pathogenic mechanisms, treatments, and while they are often experienced together there may be challenges in distinguishing between them!

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Epileptologist & Researcher Daniel Goldenholz shares his innovative approach to using 3D printing technology to create practical tools for epilepsy care! He also explains how accessible, customisable, and durable they are!

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