Epilepsy Research
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Mental Health
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Brain Surgery
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Neuroscience
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Epilepsy Research - Mental Health - Brain Surgery - Neuroscience -
Founder | International Keynote Speaker | Neuroscience & Mental Health Communication
Torie Robinson is a UK-based founder and international keynote speaker working across neuroscience, epilepsy, and clinical research environments. She leads and oversees an internationally recognised platform engaging senior clinical and industry stakeholders, and contributes to advisory boards and peer-reviewed initiatives within regulated settings. Her work spans global conference platforms, commercial collaborations, and broadcast media.
Podcast Host: Epilepsy Sparks Insights
Founder and host of Epilepsy Sparks Insights, an internationally recognised podcast engaging leading clinicians, neuroscientists, and genetic researchers in structured dialogue on the epilepsies and associated mental health conditions. The platform explores neurosurgery, gene therapy, rare epilepsies, psychiatric morbidity, precision medicine, and emerging translational research.
Research - PPI Lead
Contribute to multi-centre research initiatives as Patient and Public Involvement Lead, providing structured insight into study design, device development, stigma research, and funding strategy within epilepsy and neurological care.
Keynote speaker
International keynote speaker addressing epilepsy, mental health, neurosurgery, and genetic medicine from both clinical and lived perspectives. Drawing on experience of epilepsy surgery and psychiatric hospitalisation, Torie provides structured insight into the intersection of neurological and psychiatric illness, stigma, and systemic barriers to care. Her presentations are delivered across corporate, clinical, and research environments, combining scientific literacy with real-world operational understanding.
Publications
Co-author and contributor to peer-reviewed publications across epilepsy, mental health, and medical technology research.
Selected publications include:
Experiences of women of childbearing age with epilepsy throughout their motherhood journey: Results from a social media listening study, Epilepsy & Behavior, 21 Nov 2025
Epilepsy and mental health disorders: current challenges and potential solutions, -British Journal of Psychiatry, 20 Nov 2025
Artificial intelligence-driven closed-loop devices in sudden unexpected death in epilepsy prediction and prevention: Insights from persons with epilepsy and caregivers, Epilepsia, 23 Sep 2025
Users´ perspectives and preferences on using wearables in epilepsy: A critical review, Epilepsia, 28 Jan 2025
Dispatches on Climate and Health, The New York Times, 08 Dec 2023
Orcid ID 0009-0006-8513-5079
Current & Previous Clients
Canada
Spain
Ireland
Italy
Italy
UK
Denmark
Switzerland
Ireland
Sweden
Sweden
Australia
Additional Positions
CEO & Editor
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Podcast Host
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YouTube Host
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Patient & Public Involvement
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CEO & Editor - Podcast Host - YouTube Host - Patient & Public Involvement -
Founder & Editor for Epilepsy Sparks
Podcast Host for Epilepsy Sparks Insights
Global Prolonged Seizure Patient Council for UCB Biopharma, Belgium
PPI & Marketing Lead for PRISM (Personal, Real world Insights into Seizure Monitoring) - funded by Innovation UK, UK
PPI Lead & Patient Advisory Board Member for Neurosense at Biostrike, Portugal
Advisory Board for Lived Experience of Stroke, Epilepsy and Dementia (ABLE), iNeuron, Canada
Patient Ambassador Board Member for UCB, Belgium
Volunteer for epilepsy research at Epilepsy Action, UK
PPI Public Reading Group for Patient Leaflets at King’s College London NHS Foundation Trust, UK
Member of the International League Against Epilepsy (ILAE) British Branch and the Young Epilepsy Section
Previous positions
Governor for South London & Maudsley NHS Trust, UK
Trustee for Epilepsy Action, UK
News
Times Radio
GB News
Sky News
Current Appointments
UK
CEO
UK
Governor
Canada
Advisory Board for Lived Experience
UK
Patient & Public Involvement
Portugal
Patient Advisory Board
UK
Patient Representative - Advisory Panel
Belgium
Patient Ambassador Board
Testimonials
Hans Danneels, Byteflies, Denmark
Torie is a passionate and inspiring person. I have met Torie several times…
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Torie is a passionate and inspiring person. I have met Torie several times and she gave presentations on events, meetings, and for our people working at Byteflies to share her story and give context on epilepsy and the importance of the development of new technologies that can help people living with epilepsy. We didn't only learn a lot of her, but it is also extremely motivational to me personally and the entire team. Thanks Torie! Keep on doing what you are doing. You spark our enthusiasm!
Steven White, Santander, UK
Torie is an outstanding spokesperson for both Mental Health and Disability Awareness…
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Torie is an outstanding spokesperson for both Mental Health and Disability Awareness. I thoroughly enjoyed and benefited from her engaging presentation for the International Day of Persons with Disability. What really impressed me was her natural ability to articulate complex and very personal information in a down-to-earth and humble way. It was so thought-provoking, leaving me wanting more and 'sparking' questions and contemplations about my own journey. Tories’ professional yet personable approach was a welcomed breath of fresh air and vitally healthful! I would highly recommend her to be a speaker for any professional or charitable organisation. On a wide range of topics and themes.
Maritza Aranada, KPMG, Australia
I would highly recommend Torie as a speaker to any firm wishing to embrace…
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I would highly recommend Torie as a speaker to any firm wishing to embrace and implement diversity and inclusion in the workplace.