Rébecca Hubert is a French parent advocate and vice secretary of Alliance Syndrome de Dravet, sharing lived experience of family life with Dravet syndrome and contributing caregiver insight to advocacy and research.

Prof. Rima Nabbout is a paediatric neurologist specialising in rare and complex epilepsies, including Dravet syndrome. She leads major European research and clinical initiatives focused on improving care pathways and quality of life.

Paediatric neurologist and epileptologist Dr. Charbel El Kosseifi specialises in childhood epilepsy, neurodevelopment, and clear, accessible communication.

Cheryl Tveit is an experienced nurse, educator, and medical writer who specialises in making complex health information clear, accurate, and accessible.

Dr. Florien Boele is an Associate Professor of Medical Psychology at the University of Leeds and SEIN. Her research explores family caregiving, quality of life, and symptom management.