Prof. Rima Nabbout

Bio

Rima Nabbout is Professor of Paediatric Neurology and Director of the National Centre for Rare Epilepsies at Necker-Enfants Malades Hospital in Paris. She has led the Centre since 2006 and was appointed Professor in 2014.

She holds an MD, a PhD in Neurosciences, and an HDR (Accreditation to Supervise Research), and leads the epilepsy research programme at the Imagine Institute within the Translational Research for Neurological Diseases team. Her work focuses on rare and complex epilepsies, including developmental and epileptic encephalopathies, with a strong emphasis on improving care pathways, quality of life, and long-term outcomes for individuals and families.

Prof. Nabbout is a founding member of EpiCARE, the European Reference Network for Rare and Complex Epilepsies, and holds multiple international leadership roles within the International League Against Epilepsy. She coordinates several major European research initiatives and has served as Principal Investigator on landmark international clinical trials in rare epilepsies.

Areas of expertise

  • paediatric neurology

  • rare and complex epilepsies

  • Dravet syndrome

  • developmental and epileptic encephalopathies

  • epilepsy genetics

  • translational epilepsy research

Affiliations

Episode

Why Clinicians Must Listen to Families Living With Dravet Syndrome - 18 Dec 2025

Access this episode however you prefer:

🎧 Podcast | 🎬 Video | 📄 Transcript

Links

LinkedIn

ResearchGate

PubMed

French national reference center for rare epilepsies (CRéER)

Innov3epik

Imagine: the Necker-Enfants Malades Institute for Genetic Diseases

EpiCARE

ILAE


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