Rébecca Hubert is a French parent advocate and vice secretary of Alliance Syndrome de Dravet, sharing lived experience of family life with Dravet syndrome and contributing caregiver insight to advocacy and research.

Prof. Rima Nabbout is a paediatric neurologist specialising in rare and complex epilepsies, including Dravet syndrome. She leads major European research and clinical initiatives focused on improving care pathways and quality of life for people and families affected by rare epilepsies.