Interviews with inspiring clinicians, scientists, researchers & geneticists in the field of epilepsy - out every Thursday.
Available on your podcast app & YouTube. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**

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This page contains the archive of episodes up to 2025. Click here for episodes post 2025.

What Life Is Really Like for Families Affected by Dravet Syndrome - Rébecca Hubert, Mum & Vice President, Alliance Syndrome de Dravet, France This episode explores the lived reality of the rare epilepsy Dravet Syndrome - throug

Torie Robinson 18/12/2025 Torie Robinson 18/12/2025

A parent-led insight into life with Dravet Syndrome, this episode explores family dynamics, caregiving roles, and findings from an ethnographic study capturing the lived experiences of families across Europe.

Why Clinicians Must Listen to Families Living With Dravet Syndrome - Prof. Rima Nabbout, Necker-Enfants Malades, Université Paris Cité and Institut Imagine, France This conversation explores the rare epilepsy: Dravet Syndrome, beyo

Torie Robinson 18/12/2025 Torie Robinson 18/12/2025

This episode explores how listening to families can reshape care, communication, and quality of life in Dravet syndrome. Prof. Rima Nabbout shares insights from the D’Unseen ethnographic study, showing why family perspectives, anticipation, and advocacy are essential in rare and complex epilepsies.