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Epilepsy Sparks Insights
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Torie Robinson
About Torie
Testimonials
Contact
Sponsorship
Speaking Engagements
Publications
Media Appearances
Epilepsy Sparks Insights
Guests
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Epilepsy Sparks Insights
Guests

Interviews with inspiring clinicians, scientists, researchers & geneticists in the field of epilepsy - out every Thursday.
Available on your podcast app & YouTube. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**

For sponsorship opportunities contact us or click here for more information.

New Epilepsy Sparks Insights episodes are now published on epilepsysparks.com/podcast. This page contains the full archive of earlier episodes.

Archive
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  • December 2021
     

 
    Why Clinicians Must Listen to Families Living With Dravet Syndrome  - Prof. Rima Nabbout,   Necker-Enfants Malades, Université Paris Cité and Institut Imagine, France  This conversation explores the rare epilepsy: Dravet Syndrome, beyond
Research & Innovation, Carers & Community, Education Torie Robinson 18/12/2025 Research & Innovation, Carers & Community, Education Torie Robinson 18/12/2025

This episode explores how listening to families can reshape care, communication, and quality of life in Dravet syndrome. Prof. Rima Nabbout shares insights from the D’Unseen ethnographic study, showing why family perspectives, anticipation, and advocacy are essential in rare and complex epilepsies.

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