Challenging Racial Disparities in Epilepsy Care...plus, Brain Art! - M. Scott Perry, Cook Children’s, TX, USA #02
Podcast:
Scott Perry tells us about identifying and challenging racial disparities in epilepsy care, followed by a chat about brain art - an important method of communication when it comes to epilepsy, neuroscience, and more! This is part 2 of 2 with Scott.
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Scott and his work
Changing practice through PERC - early life database - genetic testing, infantile spasms
Disparities in standard-of-care amongst “non-whites”
Disparities in surgical care amongst “non-whites"
Further/data to collect, analyse, & interpret
Patient Q&A and the database
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Scott Perry, MD, is a Pediatric Epileptologist and Head of Neurosciences at the Jane and John Justin Neurosciences Center of Cook Children’s Medical Center, in Fort Worth, TX.
Scott assumed the newly created Head of Neurosciences role to lead a multi-specialty collaborative including neurology, neurosurgery, psychiatry, psychology, neuropsychology, and developmental pediatrics.
His clinical and research interests focus on the treatment of childhood-onset epilepsy, specifically those patients with uncontrolled epilepsy or those for which the cause is undetermined. He has an interest in the use of surgical therapies to treat and cure epilepsy. The majority of his research has investigated the use of multimodal imaging techniques to localise seizure onset, as well as the description of patient and disease characteristics that predict favorable outcomes from surgery.
Scott cares for a number of patients with epilepsy secondary to genetic disease. As our understanding of epilepsy has progressed and the sophistication of genetic testing has evolved, many new gene variants have been discovered which lead to epilepsy. These syndromes often have characteristics for which treatment choices may be altered and outcome changed based on understanding the genetic variant present. Many patients may have experienced years with uncontrolled epilepsy of unknown cause, but upon reevaluation, a diagnosis may be made. With these patients in mind, he created the Genetic Epilepsy Clinic at Cook Children's, along with his partners in genetics, to improve the diagnosis, understanding, and treatment of children with these rare conditions.
Scott is wonderfully active on Twitter - follow him at @TheNotoriousEEG
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Twitter: TheNotoriousEEG
LinkedIn: linkedin.com/in/m-scott-perry
Hospital: Cook Children's
Dravet Foundation: Medical Advisory Board
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Join me and share on social
Other episodes:
Helplines, email address, and website for Ukrainians seeking Anti-Seizure Medications.