How To Support Caregivers Of Those With A Developmental & Epileptic Encephalopathy - Eden Robertson, UNSW, Australia
Podcast:
Post-doc research fellow Eden Robertson from UNSW, Australia, speaks of her GenE Compass project results and how to support caregivers of those with a Developmental & Epileptic Encephalopathy. Eden shares what has already been learnt from the project, the benefits of altruism, and working towards health equity through leaning and working with communities. This is part two of two with Eden.
-
Intro to Eden
What are Developmental & Epileptic Encephalopathies?
How Eden’s reports are benefiting families and what was learnt by the team
Benefits of altruism
Health equity
Community collaborations in research to give people skills to be involved in research
For any politicians listening…
Next steps for GenE Compass and families
-
Eden is a Behavioural Scientist & Post-doc Research Fellow at the University of New South Wales (UNSW) School of Clinical Medicine; leading the GenE Compass project as part of the CoGENeS team. She is a also a Research & Evaluation Manager at the Starlight Children’s Foundation and a Fulbright Future Scholar.
Eden has a Honours degree in Psychology, a Graduate Certificate in Adolescent and Young Adult Health and Wellbeing, and a Ph.D. in Medicine. She has spent several years training as a behavioural scientist, dedicated to improving the wellbeing of children and young people with a serious illness. Her main research activities focus on supporting caregivers and young people to understand complex medical information and make difficult treatment decisions.
-
Twitter: eden_robertson
LinkedIn: linkedin.com/in/dr-eden-robertson
CoGENeS: cogenes-collaboration-genetic-epilepsy-neurogenetics
University: UNSW
Papers: ResearchGate
Join me and share on social
Other episodes:
Helplines, email address, and website for Ukrainians seeking Anti-Seizure Medications.